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Technical data of the treatsma.uk

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skip to main content campaign for access to treatments for spinal muscular atrophy about the team who we are working with contact us what is sma what is sma? how is sma inherited? how many people have sma? sma types explained standard of care newly diagnosed? treatments treatments spinraza® risdiplam branaplam avxs-101 reldesemtiv olesoxime off-label drugs living with sma our work what we are working on nusinersen eap sma treatment map sma videos media campaigns join the fight donate to help us carry on tell others about sma contact your mp join our team updates campaign for access to treatments for spinal muscular atrophy exciting news about new oral molecule for sma 20/06/2018 on 16th june, ptc therapeutics, inc. presented new interim data from part 1 of the firefish clinical trial which is investigating risdiplam in babies with type 1 sma. the compound is showing some fantastic results, with part 2 of the study still ongoing. this is a very exciting time for sma research. read more → scotland: new approval pathway for ultra-orphan medicines 19/06/2018 people in scotland with rare diseases may be able to access new treatments in a more efficient manner following the introduction of a new definition of ‘ultra-orphan medicines’. ‘ultra-orphan medicines’ will include medicines that can treat people with very rare conditions affecting fewer than 1 in 50,000 people, or approximately 100 individuals in scotland. read more → encouraging results of a new muscle drug for sma 17/06/2018 cytokinetics announced results of a recently completed clinical trial of reldesemtiv in sma. the data suggest that this new experimental drug for sma increases endurance and respiratory function even over a short period of 8 weeks. read more → the sunfish trial will not be conducted in the uk 14/06/2018 yesterday have been made aware that the great ormond street hospital for children will not be taking part in the roche sunfish trial that was to include sma patients with types 2 and 3. this means that the trial will not be conducted in the uk at all. read more → sunfish trial progressing fast but not in the uk 08/06/2018 the sunfish clinical trial is progressing fast, and all of its planned 186 participants will likely be recruited in the next few weeks. as of last week, enrollment of participants aged 6–11 and 18–25 years has been completed globally. however, nobody in the uk in those age groups will participate in this long-awaited trial as the all-too-prevalent red tape has impeded the opening of uk trial sites. read more → registration for nice meeting on spinraza now open to public 04/06/2018 on 27 june 2018, nice appraisal committee will meet in manchester to discuss draft recommendation for spinraza provision in england and wales. parts of the meeting will be open to the public and you are welcome join. read more → roche stops olesoxime development 30/05/2018 today roche announced they decision to stop the development of olesoxime, a neuroprotective drug that showed benefit in spinal muscular atrophy. below is their statement: read more → biogen responds to the open letter 23/05/2018 we have received a reply to the open letter that we sent to biogen after the recent smc recommendation of spinraza. please read below. read more → older posts → search submit is a uk community of people with spinal muscular atrophy (sma) as well as parents of children with sma who have joined hands to fight for wide and equitable access to treatment. we work entirely on a voluntary and non-profit basis, being driven by our committment to saving the lives of ourselves and of our dear ones. is a small charity governed by the laws of england and wales. registered address: 1 alder lodge, warberry park gardens, royal tunbridge wells tn4 8gl. copyright © 2018 . all rights reserved log in back to top × function mp_search() { ?>

URL analysis for treatsma.uk

https://www.treatsma.uk/sma/
https://www.treatsma.uk/join/contact-your-mp/
https://www.treatsma.uk/treatments/branaplam/
https://www.treatsma.uk/work/map/
https://www.treatsma.uk/treatments/spinraza/
https://www.treatsma.uk/teams/all/
https://www.treatsma.uk/treatments/reldesemtiv/
https://www.treatsma.uk/treatments/
https://www.treatsma.uk/2018/05/biogen-responds-to-the-open-letter/
https://www.treatsma.uk/work/media-campaigns/
https://www.treatsma.uk/donate/?nocache=1
https://www.treatsma.uk/treatments/off-label-treatments/
https://www.treatsma.uk/sma/inheritance/
https://www.treatsma.uk/view/stories/
https://www.treatsma.uk/treatments/avxs-101/

Whois Information

Whois is a protocol that is access to registering information. You can reach when the website was registered, when it will be expire, what is contact details of the site with the following informations. In a nutshell, it includes these informations;

Domain name:
treatsma.uk

Data validation:
Nominet was able to match the registrant's name and address against a 3rd party data source on 18-Jul-2016

Registrar:
Fasthosts Internet Ltd [Tag = LIVEDOMAINS]
URL: http://www.fasthosts.co.uk

Relevant dates:
Registered on: 08-Jan-2017
Expiry date: 08-Jan-2019
Last updated: 02-Jan-2018

Registration status:
Registered until expiry date.

Name servers:
bruce.ns.cloudflare.com
kami.ns.cloudflare.com

WHOIS lookup made at 04:05:06 27-Jun-2018

--
This WHOIS information is provided for free by Nominet UK the central registry
for .uk domain names. This information and the .uk WHOIS are:

Copyright Nominet UK 1996 - 2018.

You may not access the .uk WHOIS or use any data from it except as permitted
by the terms of use available in full at https://www.nominet.uk/whoisterms,
which includes restrictions on: (A) use of the data for advertising, or its
repackaging, recompilation, redistribution or reuse (B) obscuring, removing
or hiding any or all of this notice and (C) exceeding query rate or volume
limits. The data is provided on an 'as-is' basis and may lag behind the
register. Access may be withdrawn or restricted at any time.

  REFERRER http://www.nominet.org.uk

  REGISTRAR Nominet UK

SERVERS

  SERVER uk.whois-servers.net

  ARGS treatsma.uk

  PORT 43

  TYPE domain

DOMAIN

SPONSOR
Fasthosts Internet Ltd [Tag = LIVEDOMAINS]
URL: http://www.fasthosts.co.uk
Relevant dates:

  CREATED 08-Jan-2017

  CHANGED 02-Jan-2018

STATUS
Registered until expiry date.

NSERVER

  BRUCE.NS.CLOUDFLARE.COM 173.245.59.77

  KAMI.NS.CLOUDFLARE.COM 173.245.58.177

  NAME treatsma.uk

DISCLAIMER
This WHOIS information is provided for free by Nominet UK the central registry
for .uk domain names. This information and the .uk WHOIS are:
Copyright Nominet UK 1996 - 2018.
You may not access the .uk WHOIS or use any data from it except as permitted
by the terms of use available in full at https://www.nominet.uk/whoisterms,
which includes restrictions on: (A) use of the data for advertising, or its
repackaging, recompilation, redistribution or reuse (B) obscuring, removing
or hiding any or all of this notice and (C) exceeding query rate or volume
limits. The data is provided on an 'as-is' basis and may lag behind the
register. Access may be withdrawn or restricted at any time.

  REGISTERED no

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